This past weekend was bereaved parents retreat part 2 (welI really part 3, since David and I had been to two prior, but this was supposed to be part 2 of our most recent retreat this past August). I wasn’t sure I was going to blog about this past weekend because the retreat didn’t go as anticipated and I don’t want to upset anyone. When we met in August, so much time was spent sharing our stories that we didn’t have any time for workshops and to talk about specific topics. Many of us expressed that we would have liked more time for those kinds of things and so our incredible host invited us to continue the discussion at another retreat. My dissatisfaction with the weekend is not at all the fault of our host as she also was disappointed to hear how it was going for those of us who had been there in August and did everything she could to help us get the most out of it. If you are reading this, I want you to know that I appreciate so much being invited back and am grateful for the opportunity to once again be in a place where we could just be raw and authentic without judgment. Though it wasn’t as expected and not what we came for, there were many beautiful poignant, and meaningful moments that carried me through.
We headed down on my birthday. I don’t really acknowledge my birthday, don’t feel like I have much to celebrate other than it’s one year closer to being reunited with Ariella. I typically ask for signs from Ariella on my birthday but even forgot to do that. At the end of the day I was feeling bummed that I had not received a sign from her, but then I realized two things happened that could be construed as signs (as much as I look for signs I am still skeptical). The first was that a friend asked me if I gave Ariella my middle name (Joy) because she saw a sign at a restaurant that said “Ariella Joy”. That isn’t her middle name but the fact that it is mine and that Ariella is not a common name, prompted my friend to text me, so it could have been Ariella saying I’m here on your birthday. The second event was on the plane. Never on a single flight that I have been on has the flight crew asked if it was anyone’s birthday. The one time it occurred it happened to be my birthday (plus two others on the plane). So an entire plane of people sang “Happy Birthday” to us, with one person singing the cha cha chas, which Ariella always did as well. Ariella hated when people sang to her but loved it when it was for others (she told a restaurant that it was her cousin’s birthday so they would sing to him even though it wasn’t actually his birthday) so getting an entire plane to sing would be up her alley. And though not a sign from Ariella, I received a lovely, thoughtful gift from a friend at the retreat which both made me smile and brought tears to my eyes. A beautiful reminder that we are all here for each other for the hard times and the celebratory moments that are tinged with pain.
So the retreat. I’m not going to go into significant depth here. There is a sense of liberation when amongst a group of people with shared grief and experiences. Freedom from pretending to be okay, freedom from hiding our pain, freedom from worrying how your own grief will affect others, freedom from judgment. As soon as we were with the others it felt like instead of being suffocated by grief, it was shrouding all of us, together. Still there but a little lighter since it was spread more thin. There is relief in being able to share that burden. This coming together was ultimately what this weekend was about so in the end, it was worthwhile and meaningful, even if it took a bit to get there.
Those of us who had been at the retreat in August were expecting more conversation and workshops or breakout sessions. There is so much power in sharing our grief stories but it is also very emotionally taxing. While some weight is lifted when sharing your own story, that happens because everyone else begins taking on that grief, sharing in the burden. And many stories mirror our own, triggering the memories of our hardest times. Sending me right back to the hospital room. The tubes and wires. The beeping of the machines. Ariella’s pain and fear. Her last breaths. There is value and purpose in sharing stories, but we had done this before. We were expecting to discuss topics such as grieving differently from your spouse, changing roles, new identities, finding purpose, getting coping skills. We were looking for facilitated discussion with specific focus. And unfortunately for us, that isn’t what we got. I do not by any means want to take away from the experience the others had in sharing their stories. They hadn’t done this before and it is so important to be able to share without judgment, without interruption, to just say everything you need to say. With this retreat there were basically two groups, both with people who knew each other in some manner but one group who had done this before and one who hadn’t. That makes it difficult to make full group activities meaningful for everyone.
One of the planned activities was making a craft to represent our child and then sharing with the group. Crafts are not my thing and this was something I was not comfortable doing. Some others also chose not to do this so we were able to take that time to facilitate our own discussions. And this is what made the weekend so powerful for me. This wasn’t just conversation, it was sharing our thoughts or feelings on very specific topics and giving advice if asked, or just listening if not. It was understanding that we are not alone, not just in the shared trauma of our children dying, but in ways that we react and live and avoid and hide and cope and survive. The pain bereaved parents endure is scary. The dark, dark feelings are terrifying and knowing that others have felt the same and have come out of it allows us to have those feelings while reassuring ourselves that they won’t last forever, we will survive them. Our host encouraged us to do what we needed to get the benefit of the weekend, so we were able to talk without guilt and could just take the time to make the weekend meaningful for us. In those discussions bonds and lifetime friendships were strengthened.
During our discussion one of the moms said she looks for “micro-therapeutic moments.” Basically finding those moments or events, no matter how tiny, that are helping us to move forward. I am doing things to help me find some gladness and purpose, but I was never looking at them like that. Seeing them in a new light, to understand that they aren’t just keeping me busy but are helping me to find new meaning and grow as an individual and as part of a couple. Reminding myself that it’s okay to see beauty amongst pain, that it’s okay to not let myself suffer.
I was unsettled by the assumption of Christianity in this retreat (not by the host but by the organization facilitating the activities), in some of the activities and in some of the gifts we received. There are many bereaved parents that find comfort in religion (whether it’s Christianity or something else) and sometimes I am jealous of that faith. Maybe having such strong convictions would bring me some comfort and peace. There are others who are now very angry with G-d and are trying to reconcile that anger with their religious beliefs. I pretty much have given up religion since Ariella died. I find no comfort in it, and instead have a lot of anger. And I’m Jewish. So getting gifts that talk about Jesus and G-d and have Christian prayers really rubbed me the wrong way. This was not a faith-based retreat and not everyone is Christian. Having resources available for those who wanted it or having a specific breakout sessions to discuss religion and grief would be a nice way to incorporate religion without assumption. I did not for a second feel like it was being pushed on me or that I was being preached to, but in a retreat that is supposed to be for everyone I did not appreciate the assumption that everyone there was Christian.
I am glad we went to the retreat but it will likely be our last one for a while. My favorite moments were our self-facilitated breakout session and then just the moments when we were hanging out and talking about nothing in particular. I felt a little lighter when we got home knowing this wouldn’t be the last time I see some of these people and knowing that I can send a quick text to someone who “gets it” when I’m feeling particularly down. In the end I was able to share without judgement, remove the mask, and find some comfort.
