Halloween looks different this year but I know that families and children will find a way to continue to make it festive and fun. With or without trick or treating I know there are plenty of family activities going on for kids to partake in. I know Ariella would have come up with some creative way to enjoy one of her favorite days of the year. Maybe watching scary movies, playing games, and of course planning pranks. But on the other hand, I don’t know this. Last year I could imagine her on Halloween. I knew she was planning on being Harry Potter. She planned that the year prior when she was Hermione. I’m not sure if she would have gone trick or treating, she may have wanted to do something with her friends. But I do know she would have participated in Halloween festivities in one way or another. But this year, I just don’t know. Her last Halloween was two years ago. She would be 13 this year. A lot can change in two years as we learned in the most awful way possible. Would she still like Halloween or would she be too “old” for it? Would she still want to trick or treat or would she rather go to a friend’s party? Would she wear a costume or would she have outgrown costumes this year? And the truth is, I just don’t know. And this just shatters me. Because I don’t know what my daughter would be like at 13, at 16, as an adult. I know she would continue to be sassy, spunky, silly, kind, and generous. But there is just so much I will never get to know about my girl, that I can’t even begin to imagine. Today, when I was thinking about how she would celebrate Halloween during a pandemic, was the first day I think I truly realized that I can no longer know what Ariella would do or say or how she would react to a particular situation. I don’t know what her likes or interests would be. I don’t know if she would still be dancing or if she would have decided to do something else. I don’t know what her favorite book or movie would be and what show she would binge. Even though intellectually I knew this, it really hit me today when I couldn’t imagine her on Halloween. She slips away from me more and more each day. Of course the memories are there and always will be, but the future is gone and I can no longer imagine her in it. Because I don’t know who she would be. For those who think there is a timeline for grief, think about not just the milestones, but all the mundane daily routines your child will experience in their lifetime, and imagine them missing most of them because they died. Imagine not knowing who your child would become, not knowing their desires and wishes at each stage of their life. Imagine being faced with other children, then teens, then adults, reaching those same milestones that your child never got to achieve. I am confronted with this daily and so far, it hasn’t gotten any easier. You never stop missing your child. Never. And you always wonder. And it gets harder and harder.
Grief in the Second Year
There is a common misconception that the first year following a death is the worst. That once you get through those first milestones; birthdays, holidays, the anniversary of the death, that there is some sort of closure. That life returns to normal. That when you survive the first year, it gets easier. What they don’t tell you is that for many, the opposite is true. That the shock and numbness wears off and you are left to fend on your own. That the majority of your support system will go back to living their normal lives while you are left floundering. There are a special few who stick around, who are really there, but even among those very special people, your loss is no longer on the forefront of their minds. They have their own lives with their own routines and while they don’t forget about you and your loss, they have their own priorities.
By the second year I imagine most have started adjusting to their “new normal” (oh how I hate that phrase). I know David and I have. We’ve long since returned to work, I’ve returned to exercise, we see people, and go about our daily routines. All ordinary behavior and yet it continues to feel surreal. How? How can we possibly live our lives, act like normal people, when our daughter is dead? A phrase commonly heard when you hear about the death of a child is “I would never be able to survive the death of my child”, and yet we do. Our hearts, though broken, continue to beat and our lungs continue to draw in air. We really don’t have much choice in the matter and so we live our lives, as empty as they may feel. On the outside, we look okay. We look like we are functioning. The pain is no longer obvious to those who don’t know us. But though we may smile and laugh and even have fun, effectively hiding the pain, the pain is always there, simmering just under the surface, ready to explode at any moment. Sometimes reaching the boiling point can be predicted, and other times it’s completely unexpected. Sometimes the trigger is obvious, and sometimes, for no apparent reason, the grief and pain become so overwhelming that it literally makes me crumple, brings me to my knees. The point is, the pain is always there.
Five months into this second year and the days are harder and longer with a road in front of me filled with dread and anxiety, pain and heartache. Being in the middle of a pandemic doesn’t help matters; there are fewer distractions and means of escape. It’s like living in the movie Groundhog Day, where every day is a repeat of the day before, with no end in sight. I still cry everyday. Sometimes just a few tears and sometimes heaving sobs that take over my whole body. I still have visions of driving my car off a bridge or into a tree. I still wake up each morning with anger that I woke up at all and with the dread of the agonizing minutes and hours ahead until I can escape in sleep again. Except that sleep isn’t always an escape these days. Sometimes my dreams torture me just as much as the daylight hours, leaving me feeling unsettled for the rest of the day. During this second year I have fully come to realize what life is going to be like now. During the early days, even though the unfathomable did happen, there was no imagining how I would get through each day moving forward. Yet somehow I have made it to this point and now there is no more imagining, I know truly how terrible and painful it feels to be in this life without Ariella. And that’s what I have lying ahead of me for decades. Reality sinks in and numbness wears off during the second year. Anyone who thinks grieving should just end after a year hasn’t experienced significant loss.
I saw one of my oldest friends the other day. We have been friends 32 years. Over the years we have been in and out of touch as happens, but our daughters met a couple of times and we’ve been there for each other when it matters. We got to talking about friends and friendships and how they change. How what we need in friends changes as we get older, but also following traumatic events. And at that moment I realized that I need to stop mourning the loss of the friends and family that left me not only after Ariella died, but after Ariella was diagnosed. The friends and family that are here are here because they want to be. I have exactly the friendships and connections I need and I am grateful for them, because not everyone has that following a tragedy. I have friends that frequently reach out even though I often don’t reply. Friends that are always inviting us out and don’t get offended if we turn them down. Friends that anticipate our needs, like our friends that invited us to dinner on Halloween to make sure we aren’t going to be stuck at home having to face trick-or-treaters (if that even happens this year), knowing Halloween was a favorite of Ariella’s. Friends and family that don’t ignore my grief, that aren’t afraid to talk about Ariella, but in fact encourage it. Friends and family that understand that grief is selfish and that I am most likely not going to reach out and instead the ball is almost always in their court. Friends and family that don’t try to make it better, that don’t try to fix me, that don’t try to make me see the silver lining (there is no silver lining), that don’t think I am stuck in grief. This second year of grief has continued to be hell but being able to let go of unworthy relationships has been somewhat freeing. I’m hurting enough, I need to let go of people and situations that cause more pain.
In the second year you realize this is it. This is life from this point forward. The same thing day after day after day. Year after year. Not much to live for. Not much meaning. The second year is most definitely harder than the first.
13th Birthday
Dear Ariella,
Today is your 13th birthday. A milestone birthday. Finally a teenager (though you had the attitude of a teen by the time you were 8) and you’re not alive to see it. What we should be doing this weekend: Not a big party, since you would have just had your bat mitzvah, but maybe a sleepover with a couple of your friends. Or a mother-daughter trip to New York to take in one of the shows you’ve been wanting to see. Or a road trip adventure to someplace you’ve never been. Definitely dinner at one of your favorite restaurants. Since this is fantasyland I am imagining what we would have done had there not been a pandemic this year. Though it shatters me to think about it, I can’t not picture what this day would look like if you were alive.
Your birthdays were always extra special because we celebrated with Pop-Pop, whose birthday is the day after yours. Did I ever tell you that when I was in labor Pop-Pop actually said to hold on until the next day so you would be born on his birthday? He was joking of course (I think). This after you were already 10 days late. You always did do things on your own time, never in a rush. In fact I think you are the slowest person I have ever known. Anyway, your last birthday with Pop-Pop was in 2015, though of course we didn’t know that then. Just 4 months later he died and we were definitely missing him on your 9th birthday.
This picture above was your 9th birthday, your last normal, birthday. We missed Pop-Pop but unbelievably it was going to get worse. Our world was about to implode. On your last normal birthday you got a phone call from Mickey Mouse (or maybe it was Goofy) telling you that you would be going on a Disney Cruise and trip to Disney in April. That trip never happened. Little did we know that your hurt leg was more than just a dance injury. That it was cancer cells, mutating and growing, about to change our lives forever. Little did we know how much our lives would change. Never could we have imagined that you would live through only 2 more birthdays and that you would be fighting for your life for both of them.
I am glad you got the opportunity to experience what it feels like to fly on your 11th, your last birthday. The freedom, the weightlessness, a few minutes away from the cancer and illness and fear. There is no feeling quite like it. I wish that I could fly, leave this earth, and join you where there is no more sadness, pain, fear, and illness.
What do I want you to know on this milestone day, this 2nd birthday without you? I’m struggling. I’m sad and empty. Many would say that you would want me to be happy, that I should be happy for you. But I disagree. Not with you wanting me to be happy. Of course you do. You didn’t want to see anyone hurting, you always wanted to make them feel better. But you always understood that it was okay to be sad and scared and worried and it was okay to express those feelings. In fact you often expressed those feelings, and quite loudly I might add. You were never taught to hide them and put on a happy face for the sake of others and you wouldn’t want me to do that either. You would want me to be happy, but in my own time, and for me, not for anyone else.
Not much has changed since your last birthday, other than it’s just harder. It’s harder to get through the days. I miss you more and more each day. I miss your laugh, your smile, your hand in mine. I miss the excitement you had for your birthdays and the anticipation for Halloween. Random memories pop into my mind with no rhyme or reason and I love them, but they also feel like a sucker punch to the gut. I wish I had taken greater note of the memories we had but how could I have known? Not the big memories, but the smaller moments. The mundane ones that made up our lives. The funny things you said or did. The little things that you don’t think you have to remember because they will always be there and moments like that will continue to happen. I thought we would have had a lifetime of moments, a lifetime to make memories, not just 11 years and 7 months. Each day, each milestone, each birthday, each year, takes me farther from those memories. But yet they also bring me closer to joining you. Time is both a gift and a curse but mostly a curse. Because there is so much time left without you.
Things have been hitting me extra hard lately. I had to leave an exercise class early the other day because of a song. I have gotten teary in many a class but this time there was no way I could stay. I have never left a room so quickly, but to be fair, “Tears in Heaven” is a sad song on a good day. I had asked you for a sign earlier that day and I wondered if that was it. If so, next time I need happier, more uplifting sign! Or at least wait until I’m not in a public place. Everything is a trigger, everything brings up a memory. I would say it’s the time of year, but it’s always the time of year. After your birthday is Halloween and the holidays, and then we are getting back into diagnosis day and February, the beginning of the end. I am constantly plagued by the “what ifs” even though they won’t change anything. Initially, when you were diagnosed and during treatment it was “what if the treatment doesn’t work?” “What if you relapse?” “What if you die?” We imagined the worst case scenario and were terrified, but we couldn’t really imagine it. My thoughts went there but didn’t stay there. Because there was always hope. But after you relapsed it was “what if we had done something differently?” The wondering doesn’t do anyone any good but I can’t shut off those thoughts.
I’m still uncertain as to what I believe happens when you die, but one thing that I am certain of is that if you are still alive in spirit somewhere, you are with Pop-Pop and you should celebrate both days together. I would say eat lots of cake but you never were much of a cake person so have your favorite taco salad, and churros and ice cream. Daddy and I are going to celebrate your life with the same at your favorite restaurant. I’m sure you’re with your friends, probably planning some epic pranks. Please don’t forget to throw some signs our way amongst your partying. Here are just a few random pictures from some of your birthdays over the years.
I love you kiddo, to the moon and back, infinity times. There is so much more I want to say to you, but will keep that between us rather than on the blog. Just know that I love you always, miss you always, and look forward to the day we can be together again.
Love,
Mommy